![]() Visit & connect with us on LinkedIn to stay updated on our latest research, events, & collaboration opportunities. Join us today to make a difference in the lives of those affected by MS & contribute to the global fight against this debilitating disease. With over 15,000 members & counting, iConquerMS is more than a research network–we're a movement driven by the resilience & determination of the MS community. Together, we're committed to creating a future free of MS. Stay informed about the latest research findings & breakthroughs Share health data & experiences to advance MS researchĪccess resources, webinars, & expert-curated content Our research initiatives support projects in symptom management, personalized medicine, mental health, & wellness interventions.Īfter joining iConquerMS, members become part of a community working to drive changes in MS research. Our platform allows members to share health data, contribute to research studies, & access valuable resources.Īs a partner of PCORnet, we contribute to the global effort to better understand & treat MS. Summit attendees agreed that it’s important to align the network’s interests and priorities with all stakeholders to create momentum behind funding opportunities. Our mission is to leverage patient-generated data, innovative tech, and collaboration to accelerate treatment discovery, the improvement of patient care, and hopefully find a cure for this chronic illness.Įstablished in 2014, iConquerMS bridges the gap between the MS community & researchers. One of the biggest hurdles for the iConquerMS initiative to overcome is how to raise enough money to accomplish these goals. As Co-Chair of the Engagement Committee, Ms. The network was launched in 2022 bythe nonprofit Accelerated Cure Project (ACP) in partnership with Mr. She was diagnosed with multiple sclerosis in 2014. iConquerMS Kids & Teens is a research network for young people with MS, their families, and other stakeholders interested in supportingand participating in pediatric MS research. Unwilling or unable to provide informed consent.IConquerMS is a patient-powered research network (PPRN) dedicated to revolutionizing multiple sclerosis (MS) research and empowering those living with MS. Anita Williams is the Principal Strategist and owner of The Beta Pond, LLC. 21 years of age or older at the time of informed consent. This is an ongoing studyĪnd will last for an indefinite period of time. This study will be conducted online via the website. While the MS-PPRN is focused on enrolling people with MS, people without MS are also welcome As the MS-PPRN is part of PCORnet, theĭata collected in surveys you complete may also be shared with researchers studying other Patient-Centered Outcomes Research Institute (PCORI). National Patient-Centered Clinical Research Network. The MS-PPRN will be part of a national network for conducting research called PCORnet, the iConquerMS: People-Powered Research Networkbridged to Researchers and Other Stakeholders Launchedin Nov 2014 Improved Needs, IdeasPlans, Resources Data, SamplesDisseminationAnalysis, Results Health, Advocacy >4,600 registered participants, growing daily Established with funding from PCORI (PCORnet1. You can help conquer MS by confidentially sharing your health information and ideas. Questions that researchers and people with MS have regarding the disease, including its iConquerMS brings together people with MS, their care partners, researchers and others to understand MS and search for solutions. Scientists who are studying MS and similar diseases. Survey data will be made available to research iConquerMS was established to support patient empowerment in research and enable high-quality patient-centered outcomes research in MS. Survey data will be made available to research scientists who are studying MS and similar diseases. ![]() (MS-PPRN) that includes at least 20,000 people with multiple sclerosis (MS) who contributeĭata on their health and other topics. The purpose of this study is to create a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) that includes at least 20,000 people with multiple sclerosis (MS) who contribute data on their health and other topics. Network Paging RFC1568 Protocol microsoft-ds 445 tcp Microsoft-DS. Detailed description The purpose of this study is to create a Multiple Sclerosis Patient-Powered Research Network Internet Assigned Numbers Authority Service Name and Transport Protocol Port Number. ![]() To contribute their health data and ideas to advance and accelerate research into MS. NCT ID NCT02486562 Status Recruiting Phase Start date November 2014 First recieived date Brief summary iConquerMS™ is a research initiative developed by and for people with multiple sclerosis (MS) iConquerMS brings together people with MS, their care partners, researchers and others to understand MS and search for solutions.
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